Wednesday, October 24, 2007

I'm back -- and I survived!

After two-weeks it feels good to be back home! But first, before I continue: Sharon Lewis, everyone.

(insert rousing applause here)

I want to thank my Mom for all her help, considering everything she's done, but especially for doing such a good job in communicating here with you guys. It was important for me to feel as if your amazing gestures and well-wishes were being reciprocated, and I think Mom accomplished that, particularly amongst all the Grey's Anatomy-esque drama that transpired.

Anyway, hello out there! I feel like it's been so long. Probably because it has. It's been two weeks since my surgery and I am so happy to finally have it behind us -- truly, the worst has to be over. I'm finally back in San Francisco and, following yesterday's first post-operative appointment (the stitches were removed, making my scar look about 2% less Frankenstein-ish than before), and now officially consider myself in the Recovery Mode Phase. Since leaving the hospital, I've found that every day is better than the previous, and I'm really grateful to have Mom around since my energy level is still pretty low. I'm also glad it doesn't hurt as much to read the computer because I couldn't wait to get a new post up to say hi to everyone.

So, after having spent a week in the hospital -- and particularly after having never endured a medical emergency in my life -- I have, a million things I have to say, though for the sake of time I thought that perhaps I'd just share my top three observations (for now).

Observation #1: Brain surgery doesn't feel so good.

During my pre-op appointment, one my doctors warned me that I'd wake up after the operation feeling like I'd been hit by a Mac Truck. While he was indeed correct in that assessment, he unfortunately neglected to mention it would follow by the warm, fuzzy feeling of jumping out a plane without a parachute, rolling down a prickly cactus-ridden cliff onto a highway and subsequently run over by a gang of Hell's Angels. In other words, it was a bit painful. In fact, I'd say that week's little adventure could pass for some quality Navy Seal training. Even worse than the pain, though, if possible, was having to endure the constant nausea and dizziness. I couldn't even put my favorite rose-scented balm on my lips without feeling horrendously ill. Conveniently, I noted how probably 80% of TV commercials are food-related, relegating one of my main escapes, television, virtually impossible to endure. Fortunately, the onslaught of drugs running through my veins somehow made wall-watching a sufficient pastime.

Observation #2: Odds are odd.

After this experience I've become immune to the acknowledging the theory of low odds, as well as the terms 'rare' and 'low percentage'. After being afflicted with an acoustic neuroma in the first place (odds are 1 in 100,000), and the subsequent CSF leak (1 in 10 AN patients), I think I'm officially over observing those terms at face value. And yes, sure, I'm probably bitter. I deserve to be. So if something 'rare' and 'against the odds' doesn't happen between me and a lotto ticket sometime within the next year, bitter won't even be the appropriate term.

Observation #3: I just had brain surgery.

I still can't believe it. I'm anxious to see people though I'm still somewhat in hiding, as fatigue is a bit overpowering at times, not to mention I've still got quite a bit of scarring -- including some unplanned and unexpected souvenier-scars I (perhaps permanently) aquired on my forehead as a result of a too-tight bandage. The fun never ends, people.


So, I could go on forever, but think I'm going to take a nap instead (no offense). In the meantime, and while I hate to sound like a broken record, thanks to you all so much for your total awesomeness while we go through this. I was notified of all your texts, cards, and communication while in that torture chamber the hospital, and each and every one of you made it that much easier to endure. Thank you, thank you, thank you!

Lots of love,
Amanda

14 comments:

Unknown said...

WELCOME BACK Manda!!?!!! I can barely imagine the intensity of the past 2 weeks for you. You are amazing and I'm so relieved and grateful that you're on the path to recovery. I have to say, I can relate to being annoyed that all commercials are about food...I've noticed the same thing ever since knowing I'm pregnant and dealing with barf-o-rama-hood! I mean, HONESTLY, does Chilis and Applebees need to get the camera THAT close to baby back ribs and coleslaw? PEOPLE! Have some restraint!

Sending lots of love and keep having those better and better days ahead...xoxo, Kimbo
PS: Happy Belated Birthday! :)

Anonymous said...

Lew!!!!!!!!!! It is so good to have your ninja-ass-self (and your sense of humor) back. I cannot even imagine what you have been through and what still lies ahead these past weeks, but clearly you were up to the challenge.
P.S. If you win the lottery, my new address is......
Love, Jess

Anonymous said...

Yay, Mandy!!

Your Mom did an awesome job (Thank you, Sharon!), but it is VERY good to "hear" your voice again. So good, so Mandy. Maybe now's the time consider giving that designing thing a rest in favor of an oh-so lucrative writing career? Just an idea. Like seeing Charlotte (Mrs. Garrett) Rae at the Plush Room later this winter. . . if you're up for it, of course.

You rock!

-- Sulks

Anonymous said...

Yes! You are an f-ing champ. So good to see you posting, not that your mom didn't rock the house, of course.
Saw this link and thought of you:

http://www.mahalo.com/Britney_Spears_Meltdown_Episode_Guide

Unless brain surgery altered you completely, I know you'll want to spend all the energy you can muster getting caught up on important world events.

So glad you're recovering well. Not that there was ever any doubt.

Kate

Anonymous said...

Oh, how I've missed that sparkling wit! You are such a super-duper trooper, and I'm so glad that you're finally back home and feeling a little bit closer to your fabulous old self every day. Whenever you're back on your feet and ready to shake some tail feathers, we MUST have a big belated Badlands b-day bash for you. But for now, you just rest up and concentrate on getting well enough to watch those Golden Girls DVDs. After all, that IS the only task that really matters!
And Sharon, thanks so much for keeping us all apprised of Amanda's progress. You're one rockin' mama!

Brian

kris h said...

i'm oh so very happy to see your words and voice again. can't wait to see your face....

Scott Hsu-Storaker said...

Amanda, it's so great to read this from you! Strange thing about hospitals is that, although there is some comfort in knowing that you are in the best of care, you just cannot wait to get out. I'm glad to see you start to get up and about -- take your time and keep getting stronger.
Scott

Anonymous said...

Done and done!

Anonymous said...

So glad you are back in action, Mandy. You are incredibly brave and powerful. In fact, Chuck Norris has officially conceded that he is actually your Mini-Me.

Also, here is a fact about you:

When Amanda Lewis falls into water, Amanda Lewis doesn't get wet. Water gets Amanda Lewis.

Anonymous said...

Amanda, SOOOOO glad you're back from the torture chamber!! You have no idea how great it is to hear you through this most recent blog post. That's our girl! I had this amazing dream where you had acquired extra powers post surgery and could see through everyone's clothes?!!?!?! We really liked the bra Libby was wearing. Big hug to you and your awesome mom. See you soon gorgeous. Love, Soph

Anonymous said...

Amanda-

First of all congrats. I was by my dad's bedside for all three craniotomy's he had for his glio-blastoma (4th stage brain tumor) and he commonly referred the experience to getting kicked in the nuts repeatedly while the room is spinning, however your nuts are in your head! That said, i hope you wear the Fuck Tumors shirt with pride, because seriously....tumors just downright blow. I'd love to come and visit you sometime in the next couple months, DC is so drag this time of year anyways. Love you madly.

(mental note - i'm snapping my fingers like Ali G...RESPECT!)

Natasha Claro Southwick said...

amanda! you are so amazing, i am always thinking about you and i cannot believe what you've been through. if there's anything you need let me know.
and, i hope we can do some bedazzling soon.
oh, and happy bday to you.
love, natasha

Anonymous said...

Mandy,
So great to read a post from you and hear that you're on the mend. :) Girl, your ninja skills are right on par with your skills on the dance floor! In other words, you rock! You've been in my thoughts and prayers. Can't wait to see you once you're out and about. In the meantime, take good care.
XO
'Deek
PS: Happy VERY Belated Birthday!

Anonymous said...

Well written article.